Wednesday, April 7, 2010

Will's Allergy Adventures

Will, my 14 year old,, was diagnosed five years ago with angioedema. Basically, when he gets upset and/or stressed his body produces a chemical that it mistakes as a foreign substance and initiates an immune response. He then breaks out in hives and his lips and tongue swell. He was seen at Wilford Hall's Allergy Clinic, and we were told with meds it would be manageable for a few years and he would grow out of it. He did eventually stop having the reactions and we assumed we were over the hard part. We did not have any type of reaction for four years, then on March 4th we went to see Alice in Wonderland's midnight showing and Will started complaining of chest pain. As it turned out the chest pain was caused by bronchitis and esophageal reflux, but when he was having the chest pain he broke out in hives again. Since then he has been covered in hives nearly every day with occasional bouts with swelling of the lips, tongue, face, etc. We made the appointment with the pediatric allergist but can't get in until April 20th. We have been managing with Benedryl but he is increasingly having worse reaction with less improvement with Benedryl. Last night we had to give him 100mg of Benedryl to counteract but that is the max he can take. He is still sleeping this am which means another missed day of school which the Iowa Park School System hates and another trip to a generic doc because he has to have the school excuse so IPCISD doesn't try to take us to court again for truancy! So...I call to make his appointment on base and find out that since Ross didn't do what he needed to do to switch our insurance from Tricare Prime to Tricare Retired that we have been kicked to Tricare Standard and Will can not see his primary care doc. Ok, time to regroup and make a new plan. Will has to see a doc and he can't be seen on base, but I need to see a doc who will prescribe Atarax so we can make it through to the appointment on the 20th. I don't want to transfer all his medical records because he will be back on base on May 1st. I feel a headache coming on.

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